God Is Here, But Isn’t Telling Me Something

I’m in so much freaking pain right now I don’t know if I want to throw up or cry. Preferably both would probably make me feel better. I don’t feel like this nearly as often as I used to, as my health is improving, but it still feels like it’s going to last forever. I can’t focus on anything else and just want the day to be over so I can have a clean start with refreshed muscles.

I always try to figure out why I’m in more pain than usual so it won’t happen again. Often, there isn’t a big cause — it’s just maybe the weather (I SWEAR I get bad headaches more often on rainy days) or the fact that I was standing too long in a day my POTS was acting up. There are other times, though, that I know I’ll feel bad the next day. Taking an airplane or sitting down for long periods of time, being much more active than usual, or staying out late are all things that can cause pain. Writing causes pain for me. I wrote a lot today. I didn’t focus on my ergonomics the way I should have. That might be a big reason I’m at an 8 and want to cry now.*

Some people might take this as a sign from God that writing may not be their thing. After all, my hands become stiff and my pain creeps up my arms and shoulders the longer I’m writing at a computer, so the writing does quite literally hurt me. It isn’t comfortable the way it used to be, and you’d think if it was my calling I wouldn’t have to take breaks to pace myself so much. Writers can sit down at a computer and churn out words for hours on end without taking so much as a bathroom break. This thought has crept into my mind before. Why can’t I do what I love and what my heart desires most as a full-time job? Why did my trajectory change so drastically? Is it because it isn’t my destiny to be a writer and I should look for something else to dig in deeply?

I am reading a book right now that talks a little about “signs” and Christianity. It talks about how sometimes things that happen are not as monumental as we want them to be — they’re just little blips in the grand scheme of things. Not everything in the world is a sign from God, even though He is always here with us. My pain that is linked to writing is not a sign from God that I need to stop. I know I am supposed to be here in this little space of the Internet, and it isn’t some big selfish desire my heart has. It’s just a deep-rooted yearning I have to connect with others, share my stories, and help each of us feel less alone in the world. The chronic pain I’ve dealt with might just be yet another way to connect with people, but it isn’t a sign that I need to stop writing. Sometimes people wait too much to try to listen to what God wants them to do, rather than just strapping on their boots and trying. I think we sometimes underestimate God and don’t realize that if we’re going in the totally wrong direction, He can find ways to pull us back on track. The most important thing is to get up, and go for what we think can change the world. If we’re wrong — which people often are — we can keep trying until we get things right. After all, that’s an enormous part of what it is to be human, right? Learning from our experiences and making ourselves better from them.

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Hopefully tomorrow I’ll be feeling all better. Like I said, I was a little alarmed to feel this bad because I’ve had so many good days lately. I am grateful for that, and I hope to continue getting better and better.


*Those of you in the chronic illness community know we often rate our pain on a scale from 1-10, 1 being pain-free, to 10 being unbearable. It gives doctors a better way of seeing improvement and knowing how bad — or not — it really is.

Strange Things I Miss

Today happens to be a very POTSie day. Luckily, dizzy spells are much fewer and further between, but I hate when they decide to come around with a vengeance. I have been doing a new exercise protocol lately that is supposed to make me feel worse before I feel better, but I am optimistic about how much it could help me in the long run.*

Anyway, I am currently working on a post about what my POTS timeline has looked like, and the improvements I’ve made, as well as the things that are still different in my life post getting sick. It’s been so interesting for me to look back at different things I wrote throughout the years, but is great to have something tangible to look at regarding my life.

Certain things are becoming more normal, and I am pulling off looking like a normal human being like a pro. I have looked pretty normal since getting sick with POTS, since it’s an invisible illness, but I used to have to ask for help much more often. Now I think people around me often forget completely that anything is wrong with me! I hope one day this will be true. Despite being sick for over five years now, I will never stop hoping to get back to complete normalcy. I have a million different things I’m working on for the blog, so today I wanted to just touch on a few things that have been different for me the past half-decade.

1. I can’t enjoy taking showers. Sometimes I hop in a hot shower just because I am in pain and want something to release the tension in my muscles, but for the most part they’re just exhausting. I usually choose between washing my hair or shaving if I’m going to stand the whole time, and have to alternate between the two or rest quite a bit longer after I’m done. Does anyone actually find showers enjoyable? I can’t remember anymore; now they’re just exhausting.

2. I’m not very extroverted anymore. Before I got POTS, I was super extroverted. I was always around people and had an enormous circle of friends. Mentally, I still want to be doing a million things, but my body isn’t up to that. I feel tired and drained from doing too much, so I don’t go out nearly as much as I used to. When I do, it’s usually dinner or dessert with just one or a few friends, rather than hanging out in a giant group. When I first got sick I really couldn’t do anything other than try to stay optimistic, rest, and work as hard as possible to take care of my body so I could hopefully get better one day. I think some of my friends who weren’t around might have felt like I was neglecting our friendship, but in reality I just couldn’t function. I have lost touch with people I sometimes still miss. Getting sick really does show you who is going to be around for the long haul, and makes you see who has unconditional love for your friendship.

3. I miss writing for hours on end. My favorite thing in the world has always been writing, even back in elementary school or high school when writing wasn’t supposed to be fun. I always said English was my favorite subject, even when other kids would say “lunch,” “recess,” or “gym.” I loved learning more about our language and how to write things that people would enjoy reading. It’s difficult for me to sit at a computer and type for hours without feeling it after, and then being in a lot of pain for days after. I am very slowly working on endurance, and hope to be writing more and more.

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4. I miss being a helper. Before I got POTS I was independent and strong. I loved helping other people in any way I could, and was always there to do acts of service. There is nothing I hate more than having to swallow my pride and ask others for help. I’ve had to do that a lot the past few years, and it honestly doesn’t get much easier. I hate inconveniencing others, and I have a really hard time telling people I need something. I am still working on communicating better, but in the meantime I use my writing as an outlet.

5. I wish I could have my old dreams back. I dreamt of living in New York City as a magazine editor, and thought about how many lives I would change through my writing. I wanted to be able to support myself, pay my parents back for school, and afford my own life. I wanted to keep pushing myself and training for another half marathon, and I wanted to collect a million new skills from the new people I’d meet.

I have set new and more realistic goals, and am focusing on getting my body in shape so I can reach higher. Despite my life being much more complicated now, it’s also somehow become more simple. I realize how much I value the people who are in my life, and how important they are compared to everything else in the world. I’ve learned to appreciate the many blessings I do have, and how to live in the moment better. I still feel like I’m looking to find my purpose in the world, but I also trust God now more than ever to have better plans for me than I ever did for myself. I’m just trying to figure out what that is now.


*For any POTSies who are curious, I am doing the Levine protocol.

Girl, Wash Your Face Review

One of my resolutions this year is to read one book a month. It isn’t a lot, but it’s realistic, so any extra reads will be a great bonus. For January, I chose Girl, Wash Your Face. It was interesting timing because I recently saw a Facebook post in a group going around talking about how Rachel Hollis’ book, GWYF, was close-minded and uptight. I hadn’t read it at the time I saw the argument going on, but I was surprised that so many girls from this group of typically very accepting people had such hard feelings toward the author of GWYF, so I became increasingly curious as to what fired people up about this bestselling author.

My best friend Audrey gave me the audiobook for my birthday last month, and I’ve finally listened to more than half of it. I feel compelled to write about it now, though, because while listening I have had several moments where I want to throw my hands up and scream, “YES. THIS IS HOW I FEEL!” It’s such a joy to find novels, blogs, and television shows that just get you. In a world that feels so incredibly big, it’s always comforting to know there are other people who have things in common with you. Whether it’s your beliefs, sense of humor, hobbies, or interests, knowing that you aren’t alone is so important for every human being.

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Instagram: msrachelhollis

I am sick of the old narrative that says just because someone is living their life a different way than the majority, that they are a judgmental bigot. One of the biggest criticisms I saw floating around was that Hollis wasn’t relatable because her ideas about sex weren’t realistic. Spoiler alert: she waited to have sex until she was with her husband. Something that bothers me is that there is no place in the entertainment world for virgins or people who want to save sex for someone special. Hollis is in no way the names girls called her; she is just different than what the norm of the group posts about.

Just because Rachel held her virginity close to her own heart does not mean she is shaming others for having sex with multiple people. I absolutely hate that women can’t talk about this freely without being criticized for being close-minded or a prude. Women in this typically nonjudgmental group began talking about how the author seemed condescending and high-strung. Honestly, I can see how Girl Wash Your Face might not be relatable to everyone, but I didn’t get this vibe at all. There is a reason this book became a bestseller; there are so many women out there who can relate and feel a lot less alone while consuming Hollis’ words. There is a need for women to speak out about virginity and waiting to have sex because they exist too. Instead of continuing the narrative that these women are boring, uptight, and judgmental, we need to move to a safe middle ground of realizing that sexual preferences do not make a person or dictate what their personality is like. Sex is a verb, it isn’t an adjective that describes what a person is like at their core. 

Hollis actually has an entire chapter about sex and I absolutely loved it. I don’t think anyone would actually keep calling her the names they’ve bestowed upon her after reading it, and her views on being intimate are actually really healthy. She talks about the way she views sex, and she isn’t boring or vanilla in the least. She writes about different seasons through her sex life with her husband and the realistic ebb and flow that most people will experience. This is just another opportunity Hollis takes to talk about something that could be difficult for some of her readers, and help them see that they are — in fact — normal human beings.

Women who choose to keep sex as something for a monogamous relationship or for marriage need to feel less alone too. We have moved to a time in society where we know that you’re not a bad person for sleeping with multiple people. We accept being sexually active as a societal norm, and as long as you’re a normal human being you don’t shame other people for their preferences. This should include the young people who are saving themselves for one person, though. There aren’t many positive examples of people like this in the media. You don’t watch a television show and see a badass virgin who has a likable personality and is someone others look up to. Talking about someone being a virgin in the media is typically not done, and if it is, it is portraying a young girl losing her virginity to “become an woman” or honing in on the storyline of a lack of sex for a nerdy character. You don’t see normal twenty-something virgins in movies or on television — in Hollywood, they don’t exist. In the real world, though, they do. They are normal people who just haven’t done the deed yet, and I think we need to do a better job of acknowledging that you aren’t broken if you haven’t had those experiences yet. Sex is a beautiful thing that shouldn’t be taboo to talk about, but it also should never be used to shame someone for their lack of experience either.

Imagine making fun of someone for running — or not. Picture judging their personality solely on being a runner, not based on anything else like how friendly they are, how kind they are, or how smart they are. Running an activity that people often enjoy or never participate in; it doesn’t dictate what they’re like as a person. Sex is the same concept. You don’t suddenly change drastically because you are sexually active; you just have a new activity in your life. Sex is fun, and an incredible way to connect with someone you love, but it isn’t something that will change the core of your being.

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Instagram: msrachelhollis

If you haven’t read GWYF yet, I highly recommend it. It’s a light read and Rachel is an awesome motivational speaker — it feels like she’s just a friend offering advice. I love her little words of wisdom on Instagram, and am obsessed with this quote she attributes to her therapist,

“Someone else’s opinion of you is none of your business.”

I think we can all learn a little lesson from this on fearlessly being ourselves. Many of our biggest fears stem from what other people think about us. This year I’m trying my best to put my blinders on and share my thoughts without worrying about the opinions of others. I think this is going to be the best way to really connect with people, even though I might also reach some people who just don’t understand my heart. Subscribe to my email list to get some extra premium content this year! I have a lot to say and am excited to be sharing more with you all.

Choosing A Season Of Joy

I’m baaaaack! A lot has gone on in the week and a half I took off, but I’m ready to write again and update you all on some new developments.

It’s been crazy rainy lately and my POTS symptoms seem to get aggravated during changes in weather. Something interesting about POTS is that it affects a bunch of important organs, and has trouble finding homeostasis when even minor changes are introduced. My physical therapist takes my blood pressure and heart rate every single session — before and after and sometimes during my workouts — and it’s crazy to see that whenever I feel symptomatic my blood pressure is super low, and my heart rate is higher than usual. One cool thing about people with chronic illnesses is that we really know our bodies well. I can almost always pinpoint what is physically wrong with me because of the way my symptoms are behaving. We are going to start looking at the barometric pressure and my blood pressure throughout the day, just as a little test to see how they compare since both of us have noticed this trend. I can’t wait until POTS has been studied better and we can just look up a million and one facts about it, and one day there can actually be a cure.

Which leads me to my next point. I have been trying to be really cognizant of the blessings I have in my life lately. It makes every obstacle a whole lot easier to tackle, and I have felt more peace and joy by looking at the great things God has given me, rather than focusing only on the pain or discomfort. Today, for example, I saw a sweet little bunny outside on our front lawn. He was eating part of our flowers, but I sat and watched him until he was ready to leave before I walked past him. While I was sitting on the porch I saw a little red robin fly into a puddle next to our yard, and he started to fluff his feathers and bathe himself. These two little moments made my heart so warm the rest of the night.

As far as wedding planning goes, we keep making slow and steady progress. Robert and I got our wedding bands this week and they’re absolutely perfect. I keep putting mine on every time I go to his house because I love it so much! I am super sentimental, so I love that he picked everything out for me, but it’s also just so me. I love his too, and I think he looks super handsome with a wedding band. I wrote a little message to him in it so he’ll always be reminded of how I feel when he looks at it. 🙂 Despite all the stress of planning, I keep realizing how fast this time is going by and reminding myself that the primary feeling of this time of engagement should be joy. We have four months to go as of today, and I am so, so excited.

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How To Grow — Or Kill — A Relationship

We only have two posts left about 1 Corinthians 13, and today’s is going to be a little lengthy, so hang in there!

“Love does not delight in evil, but rejoices with the truth.”

Sadly, there is a lot of evil in the world, some of which isn’t even thought of being that way. We are going to keep this post a little simple, though, and focus on the Bible by remembering the seven deadly sins. Pride, envy, gluttony, sloth, greed, wrath, and lust are categorized as the “seven deadly sins.” These are all things that can possibly kill beautiful relationships. I could have a lengthy conversation about how each of these can completely destroy two hearts that are bound together, but today I am going to focus on the three that feel the most prevalent.

We don’t really use the word “gluttony” very often, but according to Dictionary.com it means, “Excessive eating and drinking.” When we think of this word, we think of someone who cannot stop eating, and Bruce in Matilda* comes to mind as someone who eats to the point of being gluttonous. Instead of using the traditional definition of gluttony, however, I want to dig deeper into the reason gluttony is considered one of the seven deadly sins. The key word in the definition is, excess. “Eating and drinking” is in no way a harmful behavior. We need to eat to survive, and a glass of wine can be a great treat at the end of the day. Anything in excess can be incredibly damaging, though, especially to a relationship. The most prominent things I can think of today that people enjoy to excess would be videogames, television, alcohol, or even work. It is heartbreaking just how many girls I see in wedding groups talk about how their future husband won’t pay attention to them because he is too focused on Call of Duty or another game of the sort. I have seen countless people asking for advice on how to get their loved one out of the house and to take care of them half as much as they do their Playstation or Xbox.

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I had to sit and think of excessive habits before writing them on this page, and “work” was an interesting thing to include because many people would argue that if someone works hard, it can’t possibly be a negative attribute. A quote that has always stuck with me is,

“No one on his deathbed ever said, ‘I wish I had spent more time on my business.'” -Arnold Zack

Living in the suburbs outside of Washington, DC has been an interesting way to grow up because so many people here prioritize status, money, and power above relationships. Even in school we were always pushed to take as many high level classes as we could manage without breaking — and then some. We were encouraged to play a sport every single season and maintain extracurriculars that would “help us get into a good college one day.” Even in the younger grades I had several hours of homework after spending all day at school. Never once did my high school mention that spending time with family was important, or that having close friendships would be what remained after school was all done with. Doing something meaningful and productive in the world is so important, however the influence you have in the lives of the individuals you come into contact with on a daily basis is just as important.

Greed is something that is a really obvious detrimental trait in a relationship, as it is linked to selfishness. A lack of contentment is the easiest way to lead an unhappy life, and constantly wanting more for yourself will secure a spot with all the other people who can’t focus on the present and always just want more.

Lust is one of the most obvious relationship-destroyers. When I think of “lust,” I think of Hollywood, and I think of society’s normalization of objectifying women. Movies are filled to the brim with sex, nudity, and innuendos, and whether you like it or not, we are conditioned to think that sex isn’t always a private moment between two people who care about each other. It is something that we see every day in magazines, on television, and on unsuspecting webpages, and it is no longer considered “shocking” when someone poses without any clothing on for millions of people to see. Relationships fall apart every single day because one — or both — parties believe they can do better and find someone new and exciting to pursue. Lust is one of the deadly sins because love cannot be sustained through lust. Love is fed through hearts and souls, and a beautiful body is never going to keep a relationship happy and healthy. If anything, love gives a beautiful new set of lenses to view your partner through, and gives a healthy physical component through knowing what is deep down in someone’s heart.

*Side note: When I was a kid, we saw Matilda in theaters and had to leave because I was terrified of the chokey. In hindsight this was a kind of sick movie, hahaha!


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“Love rejoices in the truth.”

Two of my favorite words in the English language are “love,” and “rejoice.” They both make my heart flutter with joy, and always have something positive attached. Truth is the key word in this sentence about love, though. “The truth” is the direct object of the sentence, which means it is the reason love is rejoicing. Your love is able to be excited because of having an open and honest connection. Trust is the very basic necessity of a strong relationship; without it there is no foundation to build love upon. Something I really love about my relationship now is that I haven’t ever questioned whether or not I am being lied to. I know my significant other is someone who is always going to be upfront and honest with me, and that has given me such an enormous level of security that I want every single person to be with someone that they first and foremost trust. The world is not a perfect place, which means the truth can sometimes hurt or be difficult to deal with, however love becomes much easier when it is centered around truth. True love doesn’t keep secrets and can grow and really flourish with truthfulness.

Our last post will finish Corinthians with,

“[Love] always protects, always trusts, always hopes, always perseveres.”

We will dissect each of these, and talk about why I think it’s important the verse ends with, “always perseveres.” Thank you for keeping up with this little segment, and I can’t wait to finish this chapter about a beautiful favorite wedding Bible verse.

All That Glitters

I haven’t done a ton of updates on wedding planning, mainly because I’ve just been so busy actually doing it. You know how fun and amazing the movies make everything seem? Parts of planning one of the most special days is just like that. Sharing the experience of finding the perfect dress with my mom and best friend was magical. I didn’t cry when I first found my dress — until I stepped onto the pedestal in front of the mirror and my mom started to. It was the only one that made both of us tear up, and that was the moment I knew I had found my dress. Going back to get the final seals of approval and choosing a few accessories was just as much fun. I’ve loved going to wedding expos, touring venues, and being silly and saying, “I wonder what has happened to my fiancée? Oh, I have lost my fiancée!” while I still can. I’ve loved looking at bridesmaid dresses, figuring out what colors will go with my shade of white (Who else knew there are like, ten different words for “White” when planning a wedding?), and daydreaming about what Robert will look like in a tux.

The hardest part of wedding planning isn’t the actual idea of planning, though. I love researching and chatting with people, I love thinking about little details, and I love getting to hear how passionate the vendors are about their craft. The hardest part about wedding planning is all the freaking chronic pain that’s been getting in the way. I hate to complain, but I do want to keep everything as real as I can for all of you as I go through the ups and downs of life. This is, after all, a lifestyle blog. I have so many things to check off of my list every day and mentally I can fly through them, but when I sit down to send emails and scroll through pages of ideas on my Pinterest boards and wedding message threads, my arms fatigue a lot faster than anything else. Ever since I’ve gotten in gear my arms have been bad again. I have knots and tender trigger points, and I have had the burning sensations I haven’t experienced in over a year now. I don’t know if the crunchy stuff in my elbows is still leftover scar tissue or something else, but my lacrosse ball doesn’t ever fully relieve the pain anymore.

I’ve had to take a step back and ask for more help. My mom has been incredible throughout this entire thing, and she’s gotten several of the big things checked off our list. I’m kind of in awe at how wonderfully she puts things together and has researched to figure out what vendors we can use to make our day a little easier and more carefree when it gets here. My mom is a cross between an angel and a superhero; I’ve always known this, but getting sick with a chronic illness at 22 confirmed it for me. She’s taken care of me throughout the entire time of being sick, and always puts my needs above her own. I couldn’t imagine doing any of this without her, and am so thankful that she’s doing this alongside me. If it weren’t for her, I know we couldn’t have pulled off a fall wedding.

I think the frustrating part of planning is that I so badly want to be able to craft and write down every single thing I do and learn. I want to blog about it all, I want to have a really snazzy wedding website to share all the details with all of you, and more than anything I want to be able to create so many special moments for everyone who is coming to our wedding. I wrote a little draft about my dream wedding when we first got engaged, and the most important thing is that I want everyone there to feel really special and joyful too. This is all such a Krista-y thing, and I want every moment that day to be filled with a new surprise and something that will make everyone really happy. There are about seven million things I want to do, but I have to be choosy because of my energy level and pain. Surprises and events take a whole lot of planning to just get the basics done, and I never would have anticipated so much work is put into one day!

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So, now that I’ve shared the hard part about wedding planning, I’ll be excited to share all the things that have brought me so much joy. At the end of the day, this date is so much more than just a wedding. It’s the start of the rest of my life with Robert, and it’s just a really great way to celebrate with people we love and care about. I already know that there will be hiccups, I will be nervous to be the center of attention for a short bit, and that not everything will go according to plan. I know everyone says that a wedding is something a girl dreams about her whole life, but my dreams go so far beyond this beautiful fall day. Once September has come and gone, I know the real adventure has just begun. 

Love Is Kind

The next part of Corinthians that I want to dissect is still in the first sentence, “Love is kind.” Kindness is one of the most powerful actions in the world, and is a virtue that offers one of the greatest opportunities for us to make an enormous impact on the lives of others.

My blogger friend, Tony, wrote this comment on my last post,

“Love is a word with a lot of weight and responsibility. It is patient and kind and those two attributes can be very hard to practice in life.”

I agree with this wholeheartedly. When you tell someone you love them, you are making a promise that you will care for their heart and be the best version of yourself because you believe they deserve that. Loving someone is an action, and actions take work. As unromantic as it sounds, relationships take a lot of conscious effort, compromise, and choosing to prioritize someone else’s needs along with your own every single day. Love isn’t something humans are naturally good at because our instinct is to take care of our own needs and look out for ourselves before caring for someone else.

Kindness isn’t innate and something that we are preprogrammed to do. People can get to a point where it’s the first reaction they have to another person, but I believe you must master patience before getting to kindness. I don’t think that it is an accident that 1 Corinthians lists patience before kindness; it seems like it was actually very intentionally written that way. We are given a million circumstances each week to practice patience. Whether it’s to a stranger at a grocery store, or to a friend, small annoyances and frustrations pop up all the freaking time. By choosing to forgo our own desires to stand up and get angry with someone and deciding to give them the benefit of the doubt, we are choosing to be patient. Kindness is one step further. Choosing kindness means we aren’t just choosing to not act, but we are choosing to act in a way that is generous and giving towards someone else.

For example, if you are walking behind someone who is very slowly pushing a grocery cart to the checkout line you want to get to, being patient is slowly following behind, without huffing and puffing or silently rolling your eyes. Being kind might be making a conversation with the person and asking how they are doing while you are waiting in line, or offering to help push the cart to the front if they look like they are struggling with it. Patience is nice; kindness is beautiful. 

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Kindness isn’t always my go-to action. Sometimes I feel tired and am passive, and just tolerate people. Other times I’m too focused on myself to be kind. Whether I’m in pain or just having an off day, I don’t always take the time and effort to go the extra mile for others. The good thing, though, is that kindness has become a much more natural reaction just from years of practice. I haven’t always been patient, which is the foundation kindness is built upon. Making a conscious effort to care for others and see things from their point of view has made my heart infinitely more kind, and has given me the ability to feel empathy for others. I think if we all just made the time and effort to do the hard work it takes to be patient and kind, it will become more of a norm in our society and the world would be a much happier and healthier place to live in.


How are you kind to others? What advice would you give someone who wants to learn to react with kindness? I would love to hear your advice on this subject, too!

Timeless Life And Love Advice

“Love is patient, love is kind. It does not envy, it does not boast. It does not dishonor others, it is not self-seeking, it is not easily angered, it keeps no record of wrongs. Love does not delight in evil, but rejoices with the truth. It always protects, always trusts, always hopes, always perseveres.” 1 Corinthians 13: 4-7

There is a reason this Bible verse is read time and time again at wedding ceremonies. Not only is it incredibly romantic, but it is God’s advice to humans about how we are to love one another. If we could all learn how to love like these four small verses suggest, the world would be an incredibly different place to live in.

I want to dissect 13 Corinthians this week. I have always said this is one of my favorite Bible verses, and I would love to share with you why. Whether or not you are a Christian, these posts will give you a greater sense of who I am, and maybe offer a few tips on how to love those in your own life even harder than ever before.

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Love is patient.

Patience is a virtue.” This is a quote most of us have heard at one time or another, but have you ever worked on creating patience in your own heart? I would say patience is one of the most difficult things human beings can cultivate. Whether you get frustrated about little things like traffic or slow walkers, or are impatient to fill the big things in life like finding the right person to spend the rest of your life with after years of dating around, patience isn’t a value that is just handed to you — you really have to work for it.

I would say I am a super-patient person in many ways, but there are still some areas that could use great improvement. I don’t mind waiting around for a friend who is running late, although traffic annoys me, it doesn’t usually affect my mood, and I am a very good teacher to people who want to learn something new. I am a great listener and would never snap at a friend for telling me the same thing over and over again. A big reason I feel like I have become a lot more patient in the past few years is that I have become a lot more empathetic. Getting sick with POTS has forced me to choose whether I should be patient and gentle with myself while working to get better or be frustrated and angry at the things I cannot control. To me it’s been a lot easier choosing to enjoy the little blessings that come about every day, and learn to deal with the crummy things that come along with a chronic illness without being bitter about them. When people ask me how I’m doing I often find the answer is, “I’m very slowly getting better.” Like, very slowly. I do sometimes feel frustrated with how much work I put into my health and the sometimes microscopic results that come from it, but I also realize that any progress is still good. Slow and steady wins the race, right?

Something I really struggle with is being patient with God’s plan for me and not understanding His timeline. I constantly question Him and whether or not He knows what’s best for me. I have so many desires that aren’t being filled, and I just want everything in my life to line up and be great now; I don’t want to have to wait for it. Impatience is definitely manifested differently in each individuals’ lives, but for me it’s just the desire to be a normal twenty-something. I want to be able to run, hike, play volleyball, drive thirty minutes to DC to visit friends, and write for hours on end without any pain. I want my freedom back so badly, and I want it now. I’ve grown so tired of the weekly doctor appointments, stretching and mobility exercises, and redundant work on the recumbent bike. I feel frustrated that despite working out, eating well, and taking care of myself better than most people my age do, I am physically not able to do as much as my peers. I can’t tell you how many times I’ve wondered why God doesn’t choose to just heal me — I know He can — and how often I do believe I know what’s best for myself. The only thing I can really gather from this is that God isn’t finished with me yet. He is still working on me and has a greater purpose for me than what I have planned for myself. This is where faith and patience become really important components of my life, and I am working to be better at both every day.

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Today’s lesson: Anger and frustration are two feelings, but that doesn’t mean they have to manifest into an action. I think the beginning stages of working on patience is going to include a lot of inner dialogue with yourself and learning how to think and rationalize before reacting. One of the coolest things about humans is that we do have the ability to think and then act, while most other creatures just follow their heart’s desire without weighing the consequences or repercussions of their actions. Patience isn’t easy, but it sure makes life a whole lot better when you do learn how to integrate it into everyday life.

Life As A Burden To All

I would be lying if I said I wasn’t sometimes insecure about having a chronic illness.

I often try to hide my pain and symptoms, even from those I love most. First and foremost, because I want to try to ignore the fact that my life isn’t the way I wish it was. A part of me feels like if I try to shove all my frustrations with being sick deep down that some of them might disappear. Maybe if I close my eyes and pretend I’m not dizzy or hurting one day I’ll wake and that will be my reality.

Second, I hate sounding like a broken record. I’m in pain every day, so if I voice my discomfort people will get sick of being around me really, really fast. It’s kind of like when someone runs a race and keeps talking about how sore they are; it’s completely valid and understandable, but after being reminded for the fifth time that their legs hurt you wonder if they think you are hard of hearing. No one wants to hear about how I have sharp, painful triggerpoints in my shoulders or can’t load the dishwasher because it hurts my forearms to grip anything for more than a minute or two.

Third, I feel broken. I sometimes wonder why people still care about me since I can’t go out and have fun like a normal 26-year-old. I can’t give the acts of service to my friends and family that I’d like to, I don’t have a normal 9-5 job, and I need help with things that others do mindlessly on a daily basis. My parents have taken care of me since I got sick, and it’s been really hard to rely on others to do things that I want to be doing for myself. I’ve always been pretty independent, so giving up control in my life has been one of the toughest tasks.

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My heart hurts because my head isn’t affected by this illness. I want to be able to run, dance, and crank out dozens of pages of words at a time. I want to be pressured by the journalism deadlines that were once the bane of my existence, and I wonder why my body has betrayed me and doesn’t allow the vigorous work ethic I once prided myself on. It hurts feeling like this illness hasn’t just taken some of my hobbies, but it has also stripped me of having a purpose on this earth. 

That’s lie #1 I was fed when I first got sick. Deep down I know it isn’t true; I actually believe this is Satan’s disgustingly twisted game of trying to make a very complete and beautiful soul feel worthless. Worthlessness is a dangerous feeling because it’s based on a lie that only seems real to the person feeling it. I strongly believe every single person placed on this earth has a purpose they are here, including myself. I think each human being can add invaluable love, kindness, and strength to the world if they choose to give it. Each individual has some sort of special “X factor” that they can offer people in their life.


God wrote in Psalm 139:14 that each and every one of us was fearfully and wonderfully made. This means that we were made with His very own heart taking an interest in us, and that He made us different than anyone else. It means He cares about us more than we could ever understand.

That being said, I know so many others who are also different in one way or another and have had this feeling on some level. The next several weeks I am going to be completely smashing this fabrication and showing that the feelings of worthlessness are based on a complete lie. Whether or not you are a regular reader or you’re new here, I would love if you would be patient and stick around until I get to the main point of these posts. This message is so important, and I want to connect to your heart and help it listen to how I have begun to debunk the lies that the evil in the world wants us to believe.

In case you don’t come back, just know that you are a valuable part of society and you can make a much greater impact than you even realize. God gives incredible blessings to those who keep pushing forward and He can create a really beautiful masterpiece from brokenness. You just have to stick around to see what the beauty in your hardship is. Sometimes it won’t be as obvious as you might hope, but He sprinkles light into even the darkest of stories.

Forever Is A Long Time

When I first got sick with POTS, I asked the nurse if this illness would last forever. She told me yes it would, and I felt sick to my stomach. Tears streamed down my cheeks like they never have before — I’m someone who tries to hold them in until they just spill out — and for the first time in my life the future looked like a deep, dark hole.

Forever is a heck of a long time to have something new and frightening. I couldn’t walk ten feet without feeling like someone was spinning me around on a desk chair, and I didn’t want to keep living a life like this. I felt so much regret for the moments I had a working body and didn’t appreciate them. I regretted the many mistakes I’ve made as a human being because I felt like my illness was punishment for being a sinner. Most of all, though, I felt scared.

The best advice I got when I was diagnosed with POTS was to take each day and every hour as it came to me. My mother wisely told me to be gentle with myself, take care of each need as it arose, and ask for help whenever I needed it. The first year I was sick I asked for help with everything. I couldn’t walk to the kitchen to fetch myself a snack sometimes because I would faint (due to insanely low blood pressure) from not having enough salt. All I could really do was watch television, talk to friends, and eat. Even sleeping was difficult, despite being exhausted every hour of every day. I was too afraid to pray until I was so worn down all I could do was sit on the bathroom floor and cry out to God. I didn’t know how to ask to be healed, and I was angry with Him for selecting me to be a victim in something I didn’t even know was possible to happen to a 22-year-old. At least not to me.

My relationship with God is slowly being repaired. As I’ve gotten older and looked back on my experiences, I’ve realized that God wasn’t punishing me for anything by letting me get sick. I still don’t understand how illness works — I don’t know why He doesn’t always heal us when I know He can. That’s something that still breaks my heart sometimes when I think about it, but I try to remember the good that has come from this. Every dark story has light in it, even if it just starts off as a tiny little shimmer. If I hadn’t gotten sick I wouldn’t have met Robert. That’s an amazing enough change in my life that I feel blessed by it and wouldn’t change anything for the world. I wish I could tell that story in a blog post, however it would take too many words to put down on a screen.

I wouldn’t have created this blog if I hadn’t gotten sick. I would be working for a magazine instead, and I wouldn’t be able to have a platform to speak about whatever I want on. I have deep convictions that are so close to my heart, and I want to help make this world a little easier for everyone to be in. I want my legacy to be making people’s hearts be warm and secure. I want people to feel less alone in this amazingly tiny world. So despite how it sometimes feels, God hasn’t left me alone; I think He is just trying to use me through my hands, my voice, and my keyboard by making my pain turn into a light for Him. I still don’t know God nearly as well as I’d like to, but I know He’s trying so hard to get through to my heart. I know He is fighting for me every day, and that He loves me even when I mess up. Please know that He loves you too. Please don’t ever feel like your mistakes have created the dark things you have in your life today. Know that there is a light at the end of your tunnel, and that a blessing will come, sometimes in disguise, when you least expect it.

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Today’s lesson: Whatever you slap the “forever” label on that seems scary and daunting, please take it off. Know that our souls are forever, and God is forever, but sickness and pain don’t have to last forever. There is beautiful grace that is ours for the taking. I’m trying to learn how to get it. I’m starting small, by trying to connect to God just a little bit more than I have before. I will keep you all posted on my journey, and I will use this as a way to stay held accountable for working toward something that seems scary, but will be the biggest blessing I could ever think of.