Irreplaceable

One of the sadder parts of having a chronic illness is when you question your own self-worth. When you’re in your twenties and chronically ill it’s really hard seeing all of the people around you traveling the world, working towards their dream job, and having fun in whatever way they see fit — whether that is going out with friends late into the night, playing sports and working out, or taking a spontaneous road trip with a big group of friends.

Some days it’s hard for me to do anything other than rest, and sometimes I have to cancel plans at the last minute because my autonomic nervous system decides that I shouldn’t be comfortable enough to do an activity. This becomes especially heartbreaking when I feel like I’ve let my loved ones down by not being able to do something that they want to. It sometimes makes me wonder why they choose me to play the special role of “best friend” or “girlfriend,” instead of someone who can be carefree and fun all the time. My chronic illness is probably my biggest insecurity.

My cardiologist must literally be an angel, as he has been so kind and comforting since the beginning of my illness. Since we have gotten to know each other, anytime he looks at my heart on an echocardiogram he looks puzzled and then says, “Krista, your heart is too beautiful for this world” with the most genuine smile on his face. It makes me tear up because I know he’s talking about something different than my physical heart — as that often beats a little too fast for its own good. He is instead referring to the core of my being. This little comment serves as a reminder that just because I sometimes feel broken or like I don’t have an as important purpose in the world as others does not mean that it’s the truth. I know other people who are sick or have struggles that make them different, and they have become even more incredible because of what they’ve been through. During times of loss, we often gain a new sense of empathy, a new appreciation for life, and a great deal of strength we never knew we had. Hardship can make us bitter, or it can be something we use to connect with others and help make them feel less alone. This is the sole reason I write so openly about my own struggles.

God puts people on this earth and lets them have hardship sometimes, not because He doesn’t love us or has forgotten about us, but instead because He wants us to glorify Him in all we do — that includes using our own heartache to lift up others. Sometimes our purpose is greater than fulfilling our own dreams.

My heart was broken. Yes, now I have an awesome boyfriend, wonderful family, and friends I know care deeply about me, but at 22 years old I had to give up my dream to live in a big city and write for Seventeen magazine and begin the fight to get my life back. Since that day three-and-a-half years ago I have chosen to push forward, even when I don’t necessarily feel like it, and never give up hope. There are a lot of things I haven’t done that I would have loved to do. I wanted to live in New York City again and I wanted to have an incredibly fast-paced, spontaneous job because that’s what I have always enjoyed so much. I love interviewing people and learning more about their stories, I love keeping up with teen trends and offering my advice to young women, and I have always wanted to make a positive impact on the world starting with our youth.

But God has a different plan for me than the one I had for myself. I can’t handle the stress or physical pressure a job in journalism has, but I can handle being vulnerable and toss aside my pride to show people that they are absolutely not alone in the world. I can handle publishing my deepest thoughts on a platform like this, even though not everyone will understand everything that I write about. Perhaps most important, though, through my struggles I have learned to love others deeply — whether or not I am their cup of tea and whether or not we have similar beliefs or values.

I still have days where I feel insecure about the way my life is with POTS, and I wonder when it will be my turn to actually live like I’m in my twenties. When I start feeling like this, though, I try to take a look at the people around me and notice how many people choose to open up to me and choose to make me an important part of their life. It isn’t because we can go out and have a wild night together or because I am able to get them into exclusive VIP parties. The people I am important to love me because of the way I love, and because of who I am as a person. There are certain “Krista traits” that are unique and special to the world. My power is that I love in a way that is irreplaceable to those who receive it. I will do anything for the people who are closest to me, and I will never turn down an opportunity to show love to those who need it, even if it means sacrificing something on my end. I strongly believe each and every person on this earth has their own qualities that are absolutely irreplaceable too.

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My favorite way to show love is through writing.

Somehow I think a lot of people will be able to relate to this post. I think we all have our own insecurities, especially in a world where it’s so easy to compare. If I have learned one thing from having a chronic illness, it’s that people love those who are genuine and themselves. We are all so different from one another, but that’s what makes the world such an amazing place. People don’t have to have a chronic illness to be able to understand some of the things I have dealt with, such as insecurity and loss. There have been so many times where someone very different than myself has reached out to me and been able to relate to something I have written in their own very different life. We are all humans with the same basic feelings and a desire to love and be loved. Just because you feel broken sometimes doesn’t mean you are not valuable to this world and loved by so many people — some of which you haven’t even met yet. Never doubt your self-worth just because you are different. The best way to make a lasting impact on the world is often because of the differences that you have to offer.


Photo Credit: Audrey Denison

My Biggest Insecurity

Ooh, juicy Krista gossip! Things like insecurities are so interesting to other people because they’re often very private things. You usually don’t know what other people in a crowded room are worried about because you’re too focused on your own things.

My biggest insecurity is weird. When I was younger I would have answered something purely physical. These are still very valid insecurities, but thankfully I have been able to get past beating myself up for my imperfections.

Today, though, I have something new in my life — my health.

For the most part this isn’t a crippling insecurity; it’s something I only notice on rare occasions, but the more I branch out, the more it hits me that I am different now. When it comes to dating or making new friends it’s still so weird introducing myself and explaining that I have an autonomic nervous system disorder, which is why I am (insert whatever odd action I am doing to keep myself feeling well). POTS is an invisible illness, which means people can’t tell I’m sick from just looking at me, but if anyone decides to spend even a short amount of their day with me they’ll find that I do things that clearly set myself apart from the average twentysomething.

The thing I’ve been afraid about most in my dating life is that I’ll keep whoever is with me from doing fun, normal activities. I can’t travel super-easily, I don’t drink, and I sometimes have to take several days to muster up enough energy to just go out to dinner with friends. My full-time job is “getting better,” which involves going to a million different appointments every week, regular trips to the gym, resting a lot, and taking a class for my Masters to keep me sane. I try to be positive about things for the most part, but I do sometimes get worn out and frustrated with the very slow progress (Or sometimes taking a step or two in the wrong direction).

I’m not used to missing out on things I want to do. I still feel disappointed when I realize I can’t do things like go to the WMZQ fest at the last minute or when I have to watch my friends go surfing while I sit and sunbathe on the beach. If I’ve had this illness for three and a half years now and am still not used to everything I have to miss out on, how am I going to find someone who is okay with missing out on so many of the great things that life has to offer when his body works just fine and he can still enjoy the activities that I miss so much?

It breaks my heart that my mind works this way, but I’ve slowly learned that the people who are in my life don’t love me because of the activities we do together — they love me for my mind and for my heart. The people who are close to me know that I am a kind, caring, and thoughtful person, and the many different character traits that I do have to offer in a relationship. I’m a good friend, I often put other people before myself, I am genuine, and I love others deeply. These are the qualities that really matter in a relationship anyway; POTS is just something that happens to come along with the whole “Krista package” now.

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Today’s lesson: Sometimes we just need to remind ourselves of our strengths, rather than honing in on the things we don’t have. The past three years I’ve realized that we don’t give other humans enough credit. There have been plenty of people who still want to be my friend or date me, despite the laundry list of things I can’t do anymore. People often do look at your heart above all else, and it has been so beautiful learning that our souls mean so much more than the physical bodies we have been given.