I’m At An 8

This month I’ve had a very rude awakening about just how much physical therapy helps me. As someone with POTS and EDS, I have lots of chronic pain, particularly in my upper body and limbs. Whenever you go to the doctor or physical therapist, they ask if you can rate your pain scale from 1-10, 10 being completely unbearable. I’ve had very wide ranges, but the more I am able to go into the office and have hands-on work done, as well as doing my monitored strength and mobility exercises, the better I typically feel.

This article about exercising and living with EDS is well written and super-relatable. My insured PT visits ran out this month and I’ve only been a little over a week without care, but my pain levels have quickly shot up to an 8. I can’t focus on anything entirely because of how much everything hurts, and I can’t do the activities I’ve worked up to because of how much it hurts my shoulders and arms. Sleep is the only thing that relieves my pain right now, and I need to get back to my therapy sessions as soon as possible so that I don’t lose the progress I’ve worked so hard to get. It’s so frustrating living in a body that depends so heavily on doctors and working out the right way, but the thing that is the most difficult isn’t the time or effort put into all of this; rather, it’s the expense and toll this unwanted illness takes on myself and my family. I’ve always tried to remain positive and focus on the good in my life without allowing myself to dwell on the fact that it’s not fair for a young twentysomething to be sick, however it’s a lot more difficult when I feel like everything in the healthcare world is working against me. I don’t want to debate politics on this blog — ever — but one thing I do want to touch on is that I very strongly believe that people with disabilities should be cared for and given as much help as necessary to have as much of a chance at normalcy as possible. “Normal” hasn’t been attainable to me yet, but I feel blessed enough to not constantly have sharp, intense pain that I am grateful for the help I do get through physical therapy.

Screen Shot 2017-12-14 at 11.14.08 AM.png

In the meantime, I’m going to continue to do the best I can by doing my gentle stretches, mobility exercises, and managing the pain the best I can until January comes when I can get back in a normal routine. I have a pretty big doctor’s appointment today, and am hoping to get some relief from my pain tomorrow, so if you could say a little prayer for me that would be amazing. I’ll be back on this little corner of the Internet soon, but wanted to write a quick update about what’s been going on lately since I haven’t been great at keeping y’all updated. Love and hugs to you all.

12 thoughts on “I’m At An 8

  1. I don’t think I’ve ever had pain to the degree that you have it or if the pain associated with chronic fatigue is similar. However, when I was first sick the pain in my neck, back, shoulders, and sometimes legs was awful and I had to take muscle relaxants, one or two on bad days. Changing my medications helped as muscle pain can be a side effect of some drugs. I would have pain it a little bit and some days it was much worse although not like yours where I have to stay in bed but at one time it was near to that. So I’m so sorry for your pain and sufferring and that life can be so difficult with stuff like this. Good on you for maintaining physical therapy.

    Anyways, what I aactully wanted to share with you were things outside of prescription muscle relaxants that help a great deal.
    I know you have physio but going for a massage each month or until the pain lets up a bit (then you can go every two months) helped me a great when my pain was bad and even now as the same back, neck, shoulder area etc. Is still often tense and when it starts to hurt a great deal I know I need a massage. I don’t know if you have any kinds of health benefits but if you do or pay for your own health insurance, they often cover massages by RMT’s at any spa, naturopath, etc. Or at least a certain amount.
    Second, I hated having to take muscle relaxants as they made me feel more tired. So I bought a heat bag from a lady at MakeIt Edmonton who is also in n Etsy. She makes bags full of flax seeds with neat fabrics on the outside. You can heat or freeze them to relieve pain. Before this I had another one not made of flaxseed but spicesand it helped a lot until it wore out. I got one for around my neck and shoulders and upper back. You can get ones like this from this lady as well as different square and rectangular ones. I heat it for about 3 Minutes and on a regular day wearing it until the heat is gone helps, on a worse day, wearing the heated flax bag two or three times is needed but still better than taking the meds. I only take those if nothing else works.

    Here’s her link: http://www.etsy.com/ca/shop/reflaxation and @reflaxation on Instagram. The lady’s name is Shawna Ayles. She does a great job and flax seed is the best asitblasts long and won’t go hard and when you heat it, it had oil in the flaxseed do it stays warmer longer.

    Also, you already do the third thing that helps me, the yoga and stretching. Yoga makes a huge difference as well and I don’t know about you but when I don’t do it for more than a couple of days I
    notice.

    Liked by 1 person

    1. Hey girl, thank you SO much for all of your tips!! I actually do take a muscle relaxant at night to help me sleep and my muscles repair overnight. Your suggestions are wonderful and remind me I should get a massage soon! I have a nice heating pad I use when I’m in bad pain, but I should start doing a little bit of gentle yoga. I so, so appreciate all of your tips and the link to the Etsy! Thanks girl ❤

      Liked by 1 person

      1. I’m glad you liked them. I didn’t want to write so much but I hate that you’re in pain so much so was trying to help. I remember what that felt like even though did me, it’s not so bad now . I do recommend the heating pad or the flax bag in the microwave the best. And if you need the muscle relaxants than of course, take them to heal and repair. Have. Lovely Christmas and I hope it gives you more energy and less muscle stiffness. Groupons are also great places to look for massages at salons with RMT’s if insurance doesn’t cover these at all.
        Cheers.

        Like

  2. I am so sorry that you’re going through a hard time. I wish there was more I can do than just words of encouragement. But I really hope you start to feel better soon. I agree with you when it comes to healthcare. I firmly believe that if someone gets sick, there only worry should be getting better.

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

w

Connecting to %s